My Aunt died today. A quick and intense battle with ALS. I guess if I could choose 5-month struggle with ALS or years and years with Alzheimer’s… oh, man. So I told my mom first thing in the morning. She is weirdly spared her grieving today as she can’t seem to remember for more than […]
Just Plain sad.
March 17, 2020 | Alzheimer's, dementia, life, patriarchy | Permalink
Sad face. Covid-19 style.
March 14, 2020 | caregiving, health, life, mental health, parenting | Permalink
In the days leading up to the covid-19 social isolation, I felt a distinct thrill like you might on the eve of a snow day or the moment the lights go out and you have to find the candles, but as I face this first full day, I just have to say that I am […]
The Hardest Part
March 13, 2020 | caregiving, life, mental health, patriarchy | Permalink
When I decided to move home to be the full-time caregiver for my family, I expected the hardest part would be to manage my mom’s ever-increasing dementia. Of course, this would be hard. The world tells you how hard this will be and I had few illusions. I also wondered if being a for-real stay […]
This shitty week
March 13, 2020 | caregiving, health, life | Permalink
This week, I took my dad to the ER for what looked like a heart attack (it was not). My aunt was moved to hospice and my cousins have no idea if she will be 5 days or 5 months. I scheduled an appointment with a lawyer for the first time ever to make sure […]
ugh.
March 12, 2020 | Alzheimer's, dementia, health, life | Permalink
Things my mom can’t remember : What happened 5 minutes ago. That her sister is dying. That there is a global pandemic. The year, month, day of the week. I want all of this to seem shocking and unreasonable, but the truth is it’s totally mundane. Millions of people in this country alone can’t remember […]
The Things We Know
March 2, 2020 | Alzheimer's, caregiving, dementia, life | Permalink
My mom started showing signs of dementia right around the time my kid was born. Maybe even before. That was six years ago. I took her to see her first neurologist 5 years ago. We were sent home with the advice that my mom should exercise more. “There was nothing to be done,” they told […]
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